I’ve been online since before the days of CompuServe, one of the early internet discussion environments. Without claiming internet expertise, I’ve seen my share of message boards and behaviors, including involvement in occasional disagreements and flames. These days I find myself among a cohort of medical patient activists who have suffered various degrees of harm […]
. One impetus towards patient-advocates focuses on stories. Our stories. Stories of harm, shock, abuse, neglect, pain, suffering, injury, death, and their outcome, including our phoenix-like rise from them. I perceive a dark side to storytelling in the context of patient-family members relaying their stories to audiences of medical professionals. On the IHI Patient Activist […]
